At Genomics England, our vision is a world where everyone benefits from genomic healthcare.
From the latest research to the lived experiences of those affected by rare conditions and cancer, Behind the Genes brings you closer to the people behind the science.
Each month, we release a deep-dive episode, alongside our Genomics 101 series - short explainers designed to make complex terms in genetics and genomics easier to understand.
Episodes
Wednesday Mar 17, 2021
Wednesday Mar 17, 2021
"Data is quite a technical topic. It's quite dry. One workshop participant said, 'Oh, you say the word data and I fall asleep.' Engagement needs to be about what matters to people, the benefits to people."
Dr Natalie Banner is an expert on the power of data, and uses her knowledge and experience to guide decision-makers and ultimately make health data a more accessible subject for all. After all, data saves lives.
In this episode, Chris and Natalie talk about the early, big challenges around genomic data like data privacy and meaningful consent; where the responsibility should lie in engaging people in the genomic conversation; and where we could be five years from now.
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