“If we wrap our missions around the patient and have early connections with them, I believe the data packages we pass on to those developing a product will be much richer, and diag...

"How do we climb the ladder, from the participant representation side? How do we demonstrate that we are partners who would be worth working with, from the view of those in power? ...

“In us and on us, we have our microbiome, which is more cells - bacterial, viral, and everything - than the number of human cells. And they're our friends. They’re like a garden, w...

“Today, where we are in the 21st century, genetics, anthropology and evolutionary biology are no ally to racists. In fact, they should be used as weapons against bigotry.”  In this...

"At first, it's all a big whirlwind and you can't process the big bombshell that you've been given. Suddenly, it turns out the life you had mapped out is not going to be like that ...

"We have accept that things are going to come along in our field that are going to make us feel uncomfortable, and they're going to stretch us. And we shouldn't be frightened of th...

"Here we have a condition that has been known medically for hundreds of years, people have received Nobel Prizes for their analysis and understanding of its genetic makeup. Given w...

"Data is quite a technical topic. It's quite dry. One workshop participant said, 'Oh, you say the word data and I fall asleep.' Engagement needs to be about what matters to people,...

“This is about developing a balance between quantitative and qualitative perspective, it isn't just about the data - the data is important, of course it is - but it's also the live...