We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which breaks down complex terms in under 10 minutes.
Episodes
Wednesday Mar 17, 2021
Wednesday Mar 17, 2021
"Data is quite a technical topic. It's quite dry. One workshop participant said, 'Oh, you say the word data and I fall asleep.' Engagement needs to be about what matters to people, the benefits to people."
Dr Natalie Banner is an expert on the power of data, and uses her knowledge and experience to guide decision-makers and ultimately make health data a more accessible subject for all. After all, data saves lives.
In this episode, Chris and Natalie talk about the early, big challenges around genomic data like data privacy and meaningful consent; where the responsibility should lie in engaging people in the genomic conversation; and where we could be five years from now.