At Genomics England, our vision is a world where everyone benefits from genomic healthcare.
From the latest research to the lived experiences of those affected by rare conditions and cancer, Behind the Genes brings you closer to the people behind the science.
Each month, we release a deep-dive episode, alongside our Genomics 101 series - short explainers designed to make complex terms in genetics and genomics easier to understand.
Episodes
Wednesday Jul 20, 2022
Wednesday Jul 20, 2022
"Biomedical datasets are biased towards Western white rich men typically. This means that historically underserved groups are less likely to be represented in the data."
Today, Maxine Mackintosh, the Programme Lead for Diverse Data at Genomics England, is joined by Alisha Davies from Public Health Wales and the Alan Turing Institute, and Brieuc Lehmann, from UCL, and both of whom are involved in the data science for Health Equity community.
They discuss the role of data and data science in promoting and improving health equity. They also talk about the lack of representation and diversity in genome research and how and why this must change.
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