We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which breaks down complex terms in under 10 minutes.
Episodes
Wednesday Nov 24, 2021
Wednesday Nov 24, 2021
“[Sophia at Genomics England] is trying to design new ways to get people of different backgrounds to understand what the database is, donate, and ensure that the data gets used.”
Joining us on today’s episode of The G Word is Sophia Luu’s family, interviewed by Sophia Luu herself, our Design Researcher on the Diverse Data Programme. She is joined by her grandfather, her grandmother, her father and her mother to discuss why not many people of East Asian descent are in our database.
During their discussion they touch on our Diverse Data Programme and the different groups of people missing in our dataset. They also discuss past experiences with doctors, abortion and the religious and cultural aspects of healthcare.