We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which breaks down complex terms in under 10 minutes.
Episodes
Wednesday Apr 26, 2023
Wednesday Apr 26, 2023
In this episode of the G Word, our Director of Ethics, Dr Natalie Banner, is joined by Dr Nicola Byrne, the National Data Guardian for health and adult social care in England. Listen to find out more about the challenges of data governance in healthcare, people’s relationship to their health and care data, the importance of transparency and accountability in how data is used to support better outcomes from health and care services.
The National Data Guardian is responsible for ensuring that personal confidential data is used to improve health and care services while also maintaining thorough safeguards to protect this information.
You can read the transcript here: National-Data-Guardian.docx
"It's absolutely important that people feel that they can share that information and then feel confident... Whether that's for their own care or thinking about the benefit, rather, people in future through research and innovation and planning."