We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Introducing our refreshed podcast identity: Behind the Genes, previously known as The G Word. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which breaks down complex terms in under 10 minutes.
Episodes
Wednesday Mar 10, 2021
Wednesday Mar 10, 2021
“This is about developing a balance between quantitative and qualitative perspective, it isn't just about the data - the data is important, of course it is - but it's also the lived patient experience. Both are key.”
In this week’s episode of The G Word, Chris Wigley is joined by Dave McCormick, who has been a member of the Genomics England Participant Panel since 2017 and became a participant in the 100,000 Genomes Project due to his rare sight condition. Dave is also an Advisor on the MSc in Genomic Sciences at The University of Manchester, and a Patient Representative in North West GLH Clinical Advisory Group.
In this episode, Dave and Chris discuss why is it so important for people studying to become bioinformaticians or clinical scientists to embed the patient voice, getting healthcare professionals and scientists to talk to people in lay language and DIGVIP (Digital Inclusion on Genomics with Visually-Impaired People), a webinar series launched to try to bring research and patients closer together.