We are Genomics England and our vision is to create a world where everyone benefits from genomic healthcare. Join us every fortnight, where we cover everything from the latest in cutting-edge research to real-life stories from those affected by rare conditions and cancer. With thoughtful conversations, we take you behind the science. You can also tune in to our Genomics 101 explainer series which breaks down complex terms in under 10 minutes.
Episodes
Wednesday Jan 26, 2022
Ben Goldacre: The use and safety of data
Wednesday Jan 26, 2022
Wednesday Jan 26, 2022
“If you want to reduce suffering and death, you don't do that by depositing a PDF in a journal archive that gets read by eight people. You've got to go out there in the real world, you've got to change activity and behaviour.”
In this week's episode of The G Word, Chris Wigley is joined by Ben Goldacre, Director of TheDataLab at Oxford University, author and and lead on an upcoming review about better use of NHS data.
He discusses the use and safety of data, his book Bad Pharma and OpenSAFELY. He also talks about his early career and connecting data.
Wednesday Jan 19, 2022
David Bick: Newborn sequencing
Wednesday Jan 19, 2022
Wednesday Jan 19, 2022
“We want to help families with rare conditions which are treatable and families with less rare conditions which are treatable. I think this equity is an important principle in terms of how we take care of children in the UK.”
In this week's episode of The G Word, Vivienne Parry is joined by David Bick, Clinical Advisor for the Newborn Genomes Programme and former Faculty Investigator and Chief Medical Officer at HudsonAlpha.
He discusses his experience with newborn sequencing, why whole genomes rather than exomes is the way forward and setting up a newborn programme. He also talks about what led him to genomics and the reasons he came to the UK.
Thursday Jan 13, 2022
Jessica Morley: Ethics and AI
Thursday Jan 13, 2022
Thursday Jan 13, 2022
“How do we better use big health data, both for the population’s health and for the health of individuals? There are an enormous number of ethical implications, and we must do our best to consider them.”
In this week’s episode of The G Word, Lyra Nightingale is joined by Jessica Morley, Policy Lead at Oxford DataLab, former Tech Advisor at the Department of Health and Social Care and specialist in ethics and AI.
Jessica discusses the gap between theory and practice in AI ethics, legislation and regulation in biotech and ethical mistakes versus ethical successes. She also discusses her background and her work with Oxford DataLab.
Wednesday Jan 05, 2022
Dr Christina Waters: Patient involvement
Wednesday Jan 05, 2022
Wednesday Jan 05, 2022
“If we can identify more quickly what is going on with children, then we can treat them faster, and hopefully halt progression or have early intervention, or make a change, bring communities together, so we can understand what's similar and different across these different diseases.”
In this week’s episode of The G Word, Vivienne Parry is joined by Dr Christina Waters, Senior Vice President of Genomic Insights and Solution at Congenica and Founder of Rare Science, a non-profit that accelerates treatments for children with rare diseases.
Christina discusses her work with Rare Science, patient involvement and genetic interpretation. She also discusses her upbringing and the merits of industry.